Statement From 'I Am ALS' On The Passing Of Eric Dane

We are heartbroken by the passing of our friend Eric Dane—a fierce advocate, a generous spirit, and a true champion in the movement to end ALS.

Eric used his platform not for attention, but for action. From the moment he joined I AM ALS, he showed up with courage and conviction, asking how he could use his superpowers to help the movement grow. It was an honor to brainstorm with him, to walk alongside him in the halls of Congress on behalf of our community, amplify the urgent need for ACT for ALS and research funding, and drive toward treatments and, ultimately, a cure. He understood that ALS is not just a diagnosis; it is a call to action for families, for answers, and for change.

Eric brought humility, humor, and visibility to ALS and reminded the world that progress is possible when we refuse to remain silent. Eric was more than a supporter of our mission—he was part of our family. His impact will live on in the research being funded, the policies being advanced, and the community he helped grow by his honesty, his bravery, and his belief in a better future for anyone struggling with this diagnosis.

We honor Eric by continuing the work he believed in so deeply: mobilizing communities, driving critical research, securing essential funding, and fighting relentlessly for real solutions.

Our thoughts are with his loved ones and our entire community. I AM ALS will carry his legacy forward—until ALS is no more.